I admit it...I'm frustrated and discouraged. I'm tired and ready for answers. I know God can heal my baby girl, and don't understand why He hasn't chosen to do so yet. I don't understand how one child can have so many rare things going on in their little body. I know there has to be a root cause for all of the stuff my little girl is going through, but we haven't been able to find it so far...I hate seeing her struggle to breathe, and I'm so tired and wish she could sleep through the night. The medical bills continue to pile up, and although it's neat to see how God provides I'm really tired of fighting with the insurance company to cover what she needs, and the stack of to be paid can be discouraging.
In the last few days we have found that on top of all her other medical issues she is aspirating food particles which are turning into fat inside her lungs (this only serves to complicate her breathing issues). She also needs IVIG treatments which our insurance company is notorious for denying. We are hoping she will get them approved and that she can do the Subq (we can do it from home) because if not it means that we have to get a port put in her chest so they can access her veins when we go to the hospital for treatments. She is also getting sick again and that means she is sleeping even worse than normal (she has only been off antibiotics about a week). As a mom it is really hard to see your child suffer. I just want her to be well!
It's been quite a while since I have been this discouraged. I feel like I'm once again asking God what He is doing. I know He has us in the palm of His hand and that everything is going to work out, I just need to be patient (not one of my better qualities). Please join me in praying for my little girl! We need favor with the insurance company so she can get the treatment that she needs! We need answers on how to help her! We need to find the root cause of what is going on! I really desire to see complete healing in her little body and I KNOW that God can do it!